Welcome to the home of our journey through disability! Our daughter Christina Jane was born with Apert Syndrome. Here we’ll reflect on our journey through this as a family and also ruminate on our developing theology of disability.
If you would like to help with Christina’s expenses, please click below:
I have been terrible about updating this site and so much has changed lately, it feels a bit overwhelming to try to rehearse what’s been going on, but we so much appreciate your prayers. Here’s a brief update as to what’s been happening and how you can pray. In September we were asked by our … More State Lines, Children’s Hospitals, and No Days Off
Our life has been a little topsy-turvey lately. This summer we were struggling with water pressure for our well (which wasn’t unique just to us as the rainfall in the Hudson Valley has been quite low). Our landlords figured out a temporary solution, but it came to a head about 3 weeks ago. They decided … More Wells, Jobs, and Smiles
We have been through quite a number of doctors appointments for Christina over the last month or so. We’ve seen almost every pediatric specialist know to man. I didn’t even realize there were pediatric cardiologists, ophthalmologists, and ENT’s. But we’re thankful we live in an era where God graciously provides for us all of these … More An Update on our Cupcake
Want to know more about what Apert Syndrome looks like? See this excellent news coverage of a woman striving in the midst of her disability.
'Til We Are Made Whole 